Live in the moment. Document a few pieces to savor later.

Archive for the ‘VOGM’ Category

VOGM Parents Alliance

 In 2005, my little family started a journey. It began when a pediatric neurologist gave us a devastating and confusing diagnosis, “your daughter has vein of Galen malformation.” For those of you who follow this kooky little blog, this is not news to you. I talk about it a lot. It consumed my life, my [...]

Goodbye New York

VOGM – 2 Year Anniversary

When you look out the window on the 14th floor of Roosevelt Hospital in New York City, you’ll see yellow taxi cabs, pedestrians crossing against the light, Starbucks coffee signs and the GE building looming against the sky.  You’ll see these things but you won’t think about them.   The room service tray might be there [...]

Happy Mother’s Day 2010

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